Coping with illness
Nobody expects to feel good when
they're ill. But they do expect
doctors and hospitals to help them
feel better. Regrettably, things can
get in the way.
From time to time, the emotional side
of illness is tougher to deal with
than the physical symptoms. Everyone
has fears and worries, and everyone
has diverse ways of dealing with
them.
Your own attitudes and expectations
play a huge part in how you feel. How
you deal with and how well you deal
with will depend a lot on how ill you
are, how long it lasts, and what
resources you have available to help
you.
In front of sudden
illness
A sudden, severe sickness or injury
that sends you in the hospital almost
always creates a sense of crisis.
Your initial thought will probably be
" What's going to happen to me ?
" For the most part, people want an
honest answer to this question.
Having a physician or nurse you can
trust and talk to frankly will help
you face what's coming.
You may also worry about your family.
How will they react ? Who will
take care of your children while
you're ill ? Or you may worry
about paying medical bills, or losing
salary if you can't work.
Physicians and nurses may not be able
to help with all of these matters.
But other people can:
|
|
Hospital social workers may be able to provide help with family matters or financial worries. They may also be able to help you find someone to talk to about your personal worries. |
|
|
You may also want to talk to a hospital chaplain or to your own minister, priest or rabbi. |
Getting used to the
hospital
The general picture of hospital life
can be disturbing when you are not
used to it. From time to time, people
get confused and lose their sense of
time. At other times, it may be tough
to tell night from day. Feelings like
these usually dissipate very quickly,
as soon as you get back to a normal
routine.
Dealing with
pain
Most people think that pain is an
inevitable part of illness. But pain
is not something you have to
tolerate. It can be controlled.
The first step toward controlling it
is to tell someone that you have it.
Doctors and nurses have no way to
"assess" how much pain you're in. You
are the only one who can tell them.
Many people wait until pain becomes
intolerable before they tell anyone
about it.
But if you speak up early, before it
gets severe, you'll be able to
control it with lower doses of
medication and fewer side effects.
Many hospitals have equipment that
let patients administer their own
pain medication simply by pushing a
button. The machine "knows" how much
medication to give and how often it
can be given. This system, known as
patient-controlled analgesia, is
above all a good way to control pain
after surgery.
If you have rigorous or distressing
pain because of a chronic illness,
you may want to ask your doctor to
refer you to a pain specialist.
Generally, doctors trained as
anesthesiologists or pharmacologists
practice this specialty. Some
hospitals also operate special "pain
clinics."
Doing as much as
you can by yourself
Even if you're not in pain when you
are ill, you may need help with
plain, everyday things, like washing
yourself or going to the bathroom.
When you're in the hospital, it's
generally easy to get the help you
need. And it may be easier to take
help when it's offered than to try to
do things on your own. But the more
help you get, the longer it may take
you to get better.
Ask your doctors and nurses what you
should and shouldn't try to do. And
try to do as much as you can on your
own, even when you're in the
hospital.
Dealing with
long-term illness
When you're facing a long healing
process, a long-term illness or
disability, it's common to have many
very different feelings as you come
to terms with your situation.
At first, you may not want to take it
very seriously. You may not believe
what your doctors have told you. Or
you may try to go on with life as
usual, as if nothing were wrong.
It may take awhile to get a real
sense about what lies ahead. And it's
not unusual to feel like you're on an
"emotional roller coaster," at times:
|
|
you may be frightened, even jumpy, at times; |
|
|
you may be annoyed that this is happening to you; |
|
|
you may blame yourself for being the cause of it, somehow; |
|
|
you may feel depressed and wonder if you'll ever be able to live a "normal" life again. |
All of these feelings are a normal
part of the process of learning to
deal with your illness. You can and
will be able to work through them,
and begin to take charge of your life
again.
If you have a severe sickness or
injury, you may need to learn to do
everyday things in a whole new way.
Take the time to find a team of
doctors and nurses that you can talk
to openly about your worries and that
is willing to work with you in the
long term. Physical therapists,
occupational therapists and
rehabilitation professionals can also
be helpful.
You may also want to find other
people you can talk to who face
similar situations. There are many
support groups and your social worker
or member of your care team can help
you identify and contact them.
"Self-help" groups organized by other
patients with similar illnesses may
help you learn to manage on your own.
Or, if you have access to a computer,
you may find it easier to "talk" to
people on the Internet.